Pierre Robin Network

A place to call home, where you are never alone



PRS Education Issues

Many of our children will require special services from the school district. We are including some tips from veteran parents who have firsthand knowledge of the educational process.

IEPs are crucial to the development of our children. There are so many aspects to a successful IEP. The first is needs. Every child, just based on the different factors involving PRS, has unique needs. These needs might include Occupational Therapy, Physical Therapy, Speech Therapy and special classroom help.

Specific goals need to be written into the IEP. Many parents initially leave these to the "professionals" or they assume because they discuss something that it has to be implemented. If the goals aren't written down specifically, they may not be acted upon. Then precious time is lost.

Parents might want an outside assessment of their child. Because of conflicts of interest in certain school districts and because of financial concerns, many special services are not obtained. We need objective people to evaluate our children.

Parents need to keep their emotions, as much as possible out of these meetings. Much ground can be lost if we are angry or accusatory towards the teachers or principals. We run the risk of being written off as hysterical parents.

Many parents have found it useful to have an an advocated involved in the IEP meetings. This person is trained to know the laws and often can explain things to the parent in an understandable fashion. They can also make sure the laws are being followed and the child's best interest is considered. If you need an advocate, please and we will try to assist finding an agency that can help you.

An informed parent is a child's best advocate.


Pierre Robin Network  3604 Biscayne Quincy, IL 62305
Email us at info@pierrerobin.org

 DISCLAIMER: This site and the Pierre Robin Email List server, and the information contained within them, are designed to be relevant to parents, adults and professionals interested in PRS. The information supplied here is not to be used as a diagnostic tool and is not intended to replace or supplement individual medical consultation. Please take this information to your child's physician or your physician and discuss it together. Pierre Robin Network, the author of these pages and the members of the email list server accept no responsibility for the misuse of the information contained within this website or within the email list server messages and files.

Copyright 1999-2012 Pierre Robin Network. All rights reserved.