Pierre Robin Network

A place to call home, where you are never alone

 

 

Caring for your Child

Caring for a child with PRS can be overwhelming.  Hopefully, you will find tips on our site to make it easier.  In addition to the information we have here, we have many forms of support available to you.

One tip I can give is one that every parent needs to remember.  Think of your baby/child just as that, a baby/child.  Don't focus so much on the PRS and medical issues, that you miss some of those important moments.  I am speaking from experience, 18 years of it, so far.

I missed out on so much, because my focus was on the PRS issues, insurance, nursing care, procedures, etc...  I wish someone would have told me that when my son was a baby.  So, that is my advice.  The little baby or child you have with PRS is a little person, who will go through the normal stages of life every child goes through.  Don't let those stages pass by because you are are so focused on the medical issues.

This doesn't mean you can ignore those medical issues, but find a happy medium and love that baby/child just like any other!

Pierre Robin Network  3604 Biscayne Quincy, IL 62305
Email us at info@pierrerobin.org

 DISCLAIMER: This site and the Pierre Robin Email List server, and the information contained within them, are designed to be relevant to parents, adults and professionals interested in PRS. The information supplied here is not to be used as a diagnostic tool and is not intended to replace or supplement individual medical consultation. Please take this information to your child's physician or your physician and discuss it together. Pierre Robin Network, the author of these pages and the members of the email list server accept no responsibility for the misuse of the information contained within this website or within the email list server messages and files.

Copyright 1999-2012 Pierre Robin Network. All rights reserved.